Clinical Trial Updates from the USA on Becker Muscular Dystrophy and Duchenne Muscular Dystrophy
A lot has happened recently regarding clinical trials for Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy (Hereafter referred to as Duchenne and Becker). All of these updates are from the American Muscular Dystrophy Association Clinical & Scientific Conference in Orlando that took place from March 8th - 11th let’s start with an update from a Becker Trial.
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[Webinar] Supporting Post Primary School Students with Muscular Dystrophy and Related Neuromuscular Conditions
Participants will gain: Enhanced knowledge of muscular dystrophy and related neuromuscular conditions. Insight into the barriers and challenges that students living with these conditions may experience. Practical strategies for fostering an inclusive and supportive learning environment.
Webinar: Supporting Primary School Students with Muscular Dystrophy and Related Neuromuscular Conditions
Following the wonderful success of their previous event, The Disability Show is building something even bigger and better this time – with more exhibitors, informative talks, networking opportunities, and a continued focus on accessibility, inclusion, and empowerment. Whether you're an organisation supporting people with disabilities, a service user, advocate, family member, or simply passionate about making a difference – this event is for you.
Next Disability Show to take place on Thursday May 7th 2026 at The Curragh Racecourse!
Following the wonderful success of their previous event, Disability Show is building something even bigger and better this time – with more exhibitors, informative talks, networking opportunities, and a continued focus on accessibility, inclusion, and empowerment. Whether you're an organisation supporting people with disabilities, a service user, advocate, family member, or simply passionate about making a difference – this event is for you.
![[CarlowLive] 'A slap in the face' - Carlow student (23) misses weeks of college due to carer no shows](https://images.squarespace-cdn.com/content/v1/63c138561d3afd3c27c17d5d/3ac07b49-382e-4986-9ce8-83afc09aa6eb/Copy_of_RIP_%2848%29-1773417463132_1773417496.jpg--_a_slap_in_the_face____carlow_student__23__misses_weeks_of_college_due_to_carer_no_shows.jpg)
[CarlowLive] 'A slap in the face' - Carlow student (23) misses weeks of college due to carer no shows
Dylan Walsh is a wheelchair user who has expressed huge frustration over being forced to go home when a carer doesn't show up for him in his course, which is just one of many obstacles in his everyday life
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[Action Duchenne] New Webinars Coming Up
We're excited to let you know about the next webinars in our series as explore the full reality of Duchenne, from diagnosis and education to mental health, caring, identity, grief and future planning.
MDI Relaunch Wellbeing Programme: Your Wellbeing, Your Way
Wellbeing isn’t one-size-fits-all. Our programme lets you pick the supports that matter most. It’s designed around what you want to get out of it. Your journey, your pace, your choice. Our wellbeing supports are continuing in 2026, giving members the opportunity to choose the support that best suits their own needs and interests.
Assistive Technology News Monthly: March 2026
The MDI Assistive Technology Monthly Update is a free resource produced by Muscular Dystrophy Ireland for our community. Each edition brings together the latest news and developments in assistive technology, a product spotlight featuring recommendations from our members, and a curated selection of resources, tools, and links to help support daily living.
Donahies Community School Students Score Big for Muscular Dystrophy Ireland!
The MDI Team were delighted to be invited to Donahies Community School, Co. Dublin to give a talk to some of its students about Muscular Dystrophy Ireland and to also thank them for fundraising for us.
Opportunity for young people aged 14 to 17 - Join UNICEF Ireland Youth Action Group!
UNICEF Ireland is launching a Youth Action Group, bringing together a small group of young people from across the country to share ideas, learn about youth activism and children’s rights, as well as helping to shape their advocacy work for young people and contributing to conversations and campaigns on issues affecting young people today.
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[RTE] Muscular Dystrophy – One family’s experience
Parents of children with Duchene Muscular Dystrophy are continuing to campaign for access to a new game-changing drug. Michael Brogan, who's son Fionn has this rare muscle-wasting condition spoke to David. Also Fianna Fáil Senator Teresa Costello who has been involved in this campaign.
Webinar to Shine a Light on the Vital Role of Neurology Nurses as Brain Awareness Week Gets Underway
A webinar will take place on Monday, 16 March to launch a national awareness campaign, #MyNeurologyNurseAndMe - highlighting the Vital Role of Nurse Specialists in Neurological Care. Organised by the Neurological Alliance of Ireland as part of National Brain Awareness Week
Passion, Pride & Champions: Team MDI Honoured to Witness the AIPF League Final
Some of Team MDI were lucky enough to be invited, by the AIPF board, to the decider of the league in Gormanstown park on Saturday 7th of March 2026.
Your Experience Matters: Share Your Diagnosis Story
We’re inviting members to share their path to diagnosis - particularly if you experienced a long, difficult, or uncertain path to getting answers. We know that many of our members have had challenging journeys to reach a diagnosis, and sharing those experiences can make a real difference in improving understanding among our members and healthcare professionals.
New Changing Places Toilet at St James's Hospital!
We are delighted to share good news that a brand-new Changing Places Toilet has been installed at the Cardiac Respiratory Building, just a 2-minute roll or walk from the main concourse at St James's Hospital, Dublin.
NCPE Completes Givinostat Review: What It Means for Duchenne Families
In November, MDI, in collaboration with Duchenne families, launched a survey to capture the lived experience of families living with Duchenne muscular dystrophy to support the patient submission for the reimbursement of givinostat. We would like to say a heartfelt thank you to everyone who took the time to participate.
Would you like to receive a free night stay at the MDI Home from Home apartment?
As the only fully accessible, self-catered apartment in Ireland, the MDI Home from Home apartment is an essential and invaluable resource for our members and members of the public with accessibility needs.
Care Alliance Ireland Calls for Tax Exemption on Carer's Allowance in New Position Paper
Care Alliance Ireland has published a new Position Paper making the case for exempting Carer's Allowance and Carer's Benefit from income tax in the Republic of Ireland. The paper was presented directly to An Tánaiste, Simon Harris, during a meeting at Government Buildings yesterday.
Action Duchenne Webinar Series 2026: Women's Health; Genetics and Decisions
Action Duchenne will host a special online event, Women's Health: Genetics and Decisions, on Monday 9th March 2026 from 6–7pm, marking International Women's Day 2026 with a spotlight on the often-overlooked needs of Duchenne carriers.